Imagine What Nosotros Could Cure
A WSJ oped with J J Plecs, formerly of Roam Analytics, which does a lot of wellness related information work.
Update:
Bob Borek, Head of Marketing, Datavant wrote to pull their endeavour to give-up the ghost along lots of information acre protecting privacy:
Update 2 the FDA lookout adult man first implements i approach to these issues. The information stays secure, simply you're allowed to brand queries, i.e. basically to run regressions on the FDA server.
The regain that cigarettes crusade cancer greatly improved human health. But that regain didn’t hand off inwards a lab or confine from clinical trials. It came from careful analysis of mounds of data.
Imagine what nosotros could larn today from big-data analysis of everyone’s wellness records: our conditions, treatments together with outcomes. Then throw inwards genetic data, information on local environmental conditions, practise together with lifestyle habits together with fifty-fifty the treasure troves accumulated past times Google together with Facebook...
So why isn’t it already happening?..., the total potential of health-care information analysis is blocked past times regulation... medical-data regulations brand it beyond what’s needed to forestall concrete impairment to consumers, together with underestimate the data’s enormous value....I'll post service whole affair inwards xxx days. In add-on to Roam, Tafi together with Datavant are 2 other companies I'm aware of working on this issue.
Update:
Bob Borek, Head of Marketing, Datavant wrote to pull their endeavour to give-up the ghost along lots of information acre protecting privacy:
We connect de-identified patient data. In short, every bit role of the procedure of de-identification, nosotros do encrypted tokens that are built from the underlying PHI. The encrypted tokens let patient records to move joined across information sets on a de-identified basis, without always revealing the underlying PHI. In contrast to the Safe Harbor method, which - every bit yous correctly indicate out - removes much of the information that would brand information analytically valuable, our approach tin move certified nether HIPAA's Expert Determination method, allowing our clients to both bring together information for analysis together with abide by patient privacy. We're already seeing exciting novel job cases, from rare affliction patient finding to designing real-world evidence trials; from payers together with providers edifice targeted intervention programs to life sciences companies forming go-to-market strategies around intelligent MD targeting.
Update 2 the FDA lookout adult man first implements i approach to these issues. The information stays secure, simply you're allowed to brand queries, i.e. basically to run regressions on the FDA server.
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